My days began to feel like an eternity; a never-ending cycle of pain and misery – this was my life since I was diagnosed with myotonic dystrophy. I remember the moment the doctor uttered those words as if it were yesterday. After that, it all became a blur as my life started to unravel. The …
I had it all. A decent job. A loving family. A nice house. But as I got older, it seemed as if something was wrong with my legs. I noticed large, blue-purple varicose veins that seemed to be growing more and more prominent. I was oblivious to the medical term for them, but I knew …
I lie in my hospital bed, writhing in agony, feeling like if I am going to die. I’m a patient suffering from Neurapathic Agony. This is a disease where I feel a burning, sometimes searing pain, hurting more than anything I’ve ever experienced in my life. The pain originates deep within my nerves, but I …
As I lay in the hospital bed, I was aware of the beeping of the machines around me that were tracking all of my body’s vital signs. I was a victim of Pancytopenia, a rare bone marrow disease, that had already cost me too much of my life. It started over a year ago, when …
I lay in my bed, my covers pulled up tight around my neck, trying to shut out the world. I sighed, my depression suffocating me as I tried to think of a way out. My thoughts raced, my heart raced and all I could do was cry. I had been in this state of despair …
I lay in my bed, exhausted and scared. I had been feeling unwell for weeks, but today the pain had intensified to a level I had never experienced before. I had been diagnosed with Myalgic Encephalomyelitis, more commonly known as Chronic Fatigue Syndrome, and my life was now filled with physical and emotional suffering. I …
I tried my very best to fight for my life, but the cancer was too advanced. I underwent intense treatments, but nothing worked. With each passing day, I felt like I was getting worse and further away from getting better. I was in constant pain and my health decreased rapidly. I suffered through the pain …
I had always been a healthy person, and my life was carefree and full of adventure. That was until I was diagnosed with Amyotrophic Lateral Sclerosis – ALS. ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. It affects a person’s ability to move, speak, eat, and breathe. …
Amyotrophic Lateral Sclerosis – ”A Journey of Desperation” Read More »
