My days began to feel like an eternity; a never-ending cycle of pain and misery – this was my life since I was diagnosed with myotonic dystrophy. I remember the moment the doctor uttered those words as if it were yesterday. After that, it all became a blur as my life started to unravel. The …
My name is Audrey, and I was born with Foetal Alcohol Syndrome. It means that I have suffered neurological, cognitive and physical disabilities because of my mother’s alcohol use during pregnancy. The diagnosis can be difficult since the disabilities I suffer from, such as hyperactivity, problems with speech and language, learning difficulties and physical abnormalities …
My name is Jane and I have dystonia. In short, dystonia is a movement disorder characterized by involuntary muscle contractions, and it affects my life in many ways – some I never expected. Firstly, there is the sheer physicality of it. I constantly feel pain from my muscle contractions, and this can be relentless at …
