My name is Joe, and I’m suffering from Myasthenia Gravis, a neurological disease in which the muscles become progressively weaker. It’s an autoimmune disorder, meaning that my body is actually attacking my own muscles, leaving me feeling weak and tired all the time.
When I was first diagnosed, I was in disbelief. It seemed like such a strange and severe condition, and I was scared of what the future would hold. My neurologist put me on medication, but it didn’t stop my condition from worsening. My strength decreased and my fatigue increased, and now I’m barely able to do anything.
I’m trying to stay positive, but it’s so hard sometimes. I can feel the toll that my disease is taking on my body, and the lack of energy makes it difficult to do the things I used to enjoy. I suffer from flare-ups at least once a week, and it’s so hard to stay positive when I’m feeling so weak and tired.
My family and friends have been extremely supportive, but I know they can’t really understand what I’m going through. I wish there was more understanding and support for people with Myasthenia Gravis, so we can get the help and understanding we need.
Living with Myasthenia Gravis is not easy, but I’m determined to keep fighting and remain hopeful. I’m taking it one day at a time and I’m certain that I can overcome this illness and lead a normal life.