I’m a long-time patient of epilepsy. Growing up, I had frequent complex partial seizures, with no idea of their root cause. It was difficult to try to explain the odd sensations, or why I’d suddenly become completely unresponsive for minutes at a time. I was often frustrated and scared, particularly when it happened in public. …
My name is Guy, and I’ve been living with Parkinson’s for most of my life. I was diagnosed at the age of ten and since then, my life has been a long battle. At first, I was devastated. I had always been a healthy and active child, and the thought of having a deadly neurological …
It was a battle I never wanted to face. Lupus had been my enemy for four years now and for four years I had been determined to beat it. It had taken a physical, emotional and mental toll on my life. Trying to cope with lupus was like dancing with the devil. The pain was …
It was a long and painful journey, but one that I would never forget. I had been diagnosed with scleroderma, an autoimmune disorder that affects the connective tissue of the body, and I knew that I had to fight for my life. I had already tried so many different treatments, but none of them had …
My days began to feel like an eternity; a never-ending cycle of pain and misery – this was my life since I was diagnosed with myotonic dystrophy. I remember the moment the doctor uttered those words as if it were yesterday. After that, it all became a blur as my life started to unravel. The …
I knew I was in trouble from the day I was diagnosed with familial hypertriglyceridemia. With an abnormal increase of triglyceride levels in my blood, I was told to make some serious lifestyle changes if I wanted a chance of survival. I changed my diet to one that was low in processed food, made sure …
My name is Joe, and I’m suffering from Myasthenia Gravis, a neurological disease in which the muscles become progressively weaker. It’s an autoimmune disorder, meaning that my body is actually attacking my own muscles, leaving me feeling weak and tired all the time. When I was first diagnosed, I was in disbelief. It seemed like …
My name is Maxine, and I’ve been living with lupus for the last 6 years. It all started when I was a young girl of only 12, when I suddenly began feeling fatigued, achy, and feverish. The doctors initially said I was just fighting off a virus, but I never seemed to fully recover. As …
I have always been an active person, but my life changed when I developed Chronic Fatigue Syndrome. At first, I barely noticed the fatigue, but soon it began to eat away at my everyday activities. My energy levels were so low that eventually I could barely get out of bed in the morning. The Pain: …
As a young girl I always felt like I didn’t quite fit in. I had difficulty connecting with others, being in large groups exhausted me, and I had a hard time following conversations. I knew that I was different, there was something that prevented me from truly belonging. After many years of searching, I finally …
