Central Pontine Myelinolysis: My Story

Central Pontine Myelinolysis: My Story

I had sudden onset of Central Pontine Myelinolysis just a few days ago. I had been healthy and active in life until this point. It all started with minor weakness in my right arm and leg. Little did I know, this was a sign of something much more serious.

My symptoms worsened over the following days and I started having slurred speech, difficulty swallowing and double vision. I was rushed to the hospital where I was diagnosed with Central Pontine Myelinolysis.

I was started on IV fluids, medications and occupational therapy. I was also taught how to use adaptive equipment such as walkers and wheelchairs. I was soon able to move around with minimal assistance and was discharged from the hospital soon after.

The experience was both frightening and humbling at the same time. It made me more aware of how fragile life can be, and how quickly things can change. It also taught me to appreciate each moment and to enjoy every experience.

I still have some areas of weakness and I’m learning to accept that I need help sometimes. I experience anxiety whenever I feel I’m not able to do something on my own. I’m learning how to manage my emotions and to take things one day at a time.

My experience with Central Pontine Myelinolysis has been life-altering, but I’m determined to make the most of it. I’m taking the necessary steps to make sure that I’m recovering fully and living life to the fullest.

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