My name is Jane and I have dystonia. In short, dystonia is a movement disorder characterized by involuntary muscle contractions, and it affects my life in many ways – some I never expected.
Firstly, there is the sheer physicality of it. I constantly feel pain from my muscle contractions, and this can be relentless at times. The very simple tasks of getting dressed in the morning or doing the groceries can become quite difficult and uncomfortable.
Then there’s the emotional toll it can take. I suffer from low self-esteem and depression due to my condition. I often feel like my condition is holding me back from being my true self and living my best life.
Finally, there’s the daily struggles. Even small tasks such as typing on a computer or putting on a pair of socks can be difficult and take considerable effort. I regularly find myself trying to hide my condition when out in public, as I’m afraid of being judged.
Living with dystonia can be hard, but the key is to remain positive and have a strong support network of family, friends and doctors. With the right mindset and support, no challenge is insurmountable. I have discovered that I can still have a fulfilling life – perhaps even more so due to my condition – and I’m determined not to let anything stand in my way.